December 11, 2000
EFNS: Cabergoline May Be Effective In Reducing Symptoms Of Restless Legs
Heat Speeds Up Efficacy Of Opiate Analgesic
Methadone in the Treatment of Chronic Nonmalignant Pain: A
Fibromyalgia Impact Questionnaire Provides Responsive Measure Of Perceived
CHRONIC PAIN AND THE DOCTOR-CLIENT RELATIONSHIP AN ACTION RESEARCH PROJECT: The paper "describes the reconnaissance stage
of an action research project that investigated the : problems found in the relationship
between doctors and persons with chronic pain, and seeks, enacts and evaluates
solutions to them."
Study found reduced ACTH response after infusion of the hormone
vasopressin in CFS patients
Psychoneuroendocrinology Volume 26, Issue 2, Pages 175-188 Date: February 2001
August 12, 2000
Research: Challenges and Opportunities from the National Institute of Arthritis and
Musculoskeletal and Skin Diseases (NIAMS)
August 3, 2000
Research May Aid in Treatment of Sjogren's syndrome, FMS, and CFS
A possible link between the symptoms of Sjogren's syndrome (SS) and an antibody in the
blood that interferes with nerve transmission has been identified by medical researchers
in Adelaide, South Australia.
August 2, 2000
REHAB CENTER, INC.
Mark J. Pellegrino, M.D., is a Board Certified specialist in Physical Medicine and
Rehabilitation who completed his training at Ohio State University Dodd Hall where he was
Chief Resident. He is a member of the American Academy of Physical Medicine and
Rehabilitation and the American Congress of Rehabilitation Medicine who serves as the
Rehabilitation Medical Director at Alliance Community Hospital Center for
Rehabilitation. he has a private practice in Canton, Ohio.
Dr. Pellegrino is uniquely qualified to
help patients with fibromyalgia. Not only is he a physician whose area of
special interest is treating this condition, he has it himself. He has done research
in fibromyalgia and has published several articles. he is also the author of several
book, "Fibromyalgia, Managing the Pain", "The Fibromyalgia Survivor"
and "Laugh at Your Muscles". He started the first fibromyalgia support
group in Canton, Ohio, which continues to meet on a monthly basis. He is a national
expert on fibromyalgia and has given numerous lectures.
July 22, 2000
Scientific Workshop Summary: The Neuroscience and Endocrinology
A scientific workshop on the Neuroscience and Endocrinology of Fibromyalgia was held at
the National Institutes of Health (NIH), in Bethesda, Maryland, on July 16 and 17, 1996.
The workshop, organized by Dr. Stanley Pillemer and Dr. Susana-Serrate Sztein of the
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), NIH,
focused on the basic science of chronic pain, neuroendocrinology, circadian rhythms, and
July 19, 2000
Fibromyalgia Information Index - An extensive collection of resources on
Fibromyalgia, organized into categories. Find out about diagnosis, treatments, research,
coping with pain, and more.
July 19, 2000
An Interview with Dr. Don L. Goldenberg,
Chief of Rheumatology, Director of the Arthritis-Fibromyalgia
Center, Newton-Wellesley Hospital, Newton, Massachusetts
May 8, 2000
Getting Back to Basics:CFS and FM Are More The Same
Than They Are Different by Melissa Kaplan
Network Newsletter, May 2000, VI(5):3-10
For years, now, those of us diagnosed with chronic fatigue syndrome have waited for
the PTB (powers that be) to come up with a better name. Not only do we want a name more
reflective of what the disease/disorder/syndrome does to our bodies and minds, we want
that word fatigue out of the name. We are tired of people telling us, Well, Im
tired, too, and we are tired of people thinking that the often overwhelming fatigue
is the most serious or devastating symptom we experience.
Many of us are tired of waiting for the PTB to come
up with something better.
May 8, 2000
Don't Be Fooled by Fraudulent Health Claims
Every year, consumers waste billions of dollars on unproven, fraudulently marketed, and
sometimes useless health care products and treatments. If a health care claim sounds too
good to be true, it probably is. Here's how to spot false claims and avoid being taken for
April 17, 2000
JAW PROBLEMS: For TMJ, conservative treatment is best
10 million Americans suffer from painful TMJ. Unfortunately, doctors have no
standard treatments to improve the complex joint that joins the jaw bone to the skull. The
vast majority of TMJ patients are women in their childbearing years. While treatment
options abound, doctors recommend conservative, reversible therapy for TMJ.
April 17, 2000
Scrutinizing Squalene The U.S. Defense Department has agreed to review
a study that could help answer why thousands of military personnel who served during the
Gulf War have unexplained illnesses.
April 15, 2000
What is a Syndrome? - David A. Nye MD
tells us why Fibromyalgia is considered a "syndrome" rather than a
March 21, 2000
Concerns Grow Over Herbal Aids
By Guy Gugliotta, Washington Post Staff Writer
Sunday, March 19, 2000; Page A01
Mounting evidence suggests that increasing numbers of Americans are falling seriously ill
or even dying after taking dietary supplements that promise everything from extra energy
to sounder sleep.
February 27, 2000
Support Groups More
Popular Than Ever -- Embarrassment Not a Deterrent The increasing availability
of the Internet is helping to fuel a rapid growth in self-help groups according to a new
study published in the February issue of American Psychologist, a journal of the American
Psychological Association (APA).
Fibromyalgia sufferers must deal with pain and negative feedback
By Joan Whitely of the Las Vegas Review-Journal
New Diagnostic Tool for CFS
New data presented to the Annual Meeting of the American
College of Allergy, Asthma and Immunology suggests the discovery of a potential diagnostic
tool and therapeutic measurement for CFS.
A day after Republican Rep. Chris
Shays of Connecticut ended congressional hearings on the controversial decision mandating
the inoculation of 2.4 million U.S. troops against anthrax, President Clinton quietly
signed an executive order, or EO, that denies soldiers the right to refuse experimental
June 17, 1999
NICKLES INTRODUCES PAIN RELIEF PROMOTION ACT
WASHINGTON--Assistant Majority Leader Don Nickles today
introduced his Pain Relief Promotion Act and urged Congress to pass it this year.
"Alleviating pain and other distressing symptoms in cases of
advanced chronic disease and terminal illness is a public health priority," Nickles
said. "It is my desire to see that better pain control methods are discovered,
offered in medical training and made available to anyone in need. When Oregon legalized
assisted suicide it created a dynamic whereby some doctors underutilized controlled
substances as pain relievers. This bill for the first time affirms, by law, that federally
controlled substances should be utilized for pain control, even if use of such substances
increases the likelihood of death.
"At the same time, this bill re-affirms the intent of
Congress that using federally controlled substances for the purpose of assisting in
suicide is not allowable under existing law."
The measure is designed to:
Re-affirm doctors' ability to use controlled substances to
aggressively manage patients' pain and discomfort (especially among terminally ill
patients) and reject their deliberate use to kill patients.
Provide doctors and health professionals with the most
reliable, state-of-the-art practices on relieving pain.
Provide research grants and establish a program for palliative
care focusing on the treatment of pain and end-of-life symptoms.
Educate local, state and federal law officers to better
accommodate the legitimate use of controlled substances for pain relief.
Clarify existing law to retain a uniform national standard over
controlled substances. In those states which do not legalize assisted suicide, the
application of the Controlled Substances Act is not changed.
The bipartisan Pain Relief Promotion Act is the result of a
year-long effort to develop legislation that promotes the emerging discipline of
palliative care, comforts terminally ill patients and those in chronic pain, and protects
doctors who prescribe drugs for the legitimate medical purpose of relieving pain.
The bill is supported by the National Hospice Organization, which
represents 2,000 hospices specializing in end-of-life care nationwide.
Mycoplasma Registry for Gulf War Illness &
Chronic Fatigue Syndrome
The following information is taken from information supplied
Sean & Leslee Dudley at the Co-Cure list (Chronic Fatigue Syndrome and Fibromyalgia
Mycoplasma Registry for Gulf War Illness & Chronic Fatigue
303 North 47th Street, J-10
San Diego, CA 92102-4801
Tel. & Fax: 619-266-1116
Sean and Leslee Dudley became ill with chronic fatigue syndrome
over ten years ago. They were the first civilians to be added to the Department of Defense
Persian Gulf War Illness Registry.
The Registry has became a source of support and information for
patients throughout the U.S., Canada, Europe and Australia, and it provides telephone
interviewing to assist people needing help. It is an unincorporated nonprofit association,
California registration number 6679. The Registry works to unite
CFS and GWI groups in getting a stronger voice and more funding, and it also recognizes
other illnesses in which Mycoplasmas have been found or believed to act as either a cause
The Registry grew out of an effort to keep statistics about
people who called for help and it started registering people in protest of the Centers for
Disease Control's refusal to track Mycoplasma infection. The Centers for Disease Control
does not categorize Mycoplasmas, chronic fatigue syndrome or Gulf War Illness as
reportable diseases, and the lack of accurate numbers can be used to justify lack of
funding. All names are kept confidential but numbers and statistics are used for the media
The registry form may be found at either:
UT Southwestern researcher finds genetic cause
for Gulf War syndrome
DALLAS - June 16, 1999 - A genetic trait can predispose people to
Gulf War syndrome, a new study has found.
In an article published in today's issue of Toxicology and
Applied Pharmacology, a UT Southwestern Medical Center at Dallas researcher shows why some
veterans of the Gulf War may have gotten ill from certain chemical exposures while others
The "Push" for Awareness
Russell Jones (RJ), President of Our World FM/CFS Inc. left
yesterday on his journey via wheelchair for Fibromyalgia and CFS awareness. The trip began
in Constantia, New York and ends in Daytona Beach, FL. The 1,246 mile journey is dubbed
"the push for awareness" as RJ will be pushed by volunteers along the route by
anyone who "believes that FM/CFS Conditions and Syndromes are Real." Please
support RJ's effort anyway you are able to.
Check to see if you, your support group, family or friends might
be able to help push RJ.
Go to: http://www.abcjb.com/disc15_toc.htm
to add what you can do to help including overnight sleeping along the way help and Follow
cars to help.
Obtaining Disability Benefits - David versus
This is Part I of a guest feature article by disability attorney
Scott E. Davis. From About.com;s Guide to Chronic Fatigue Syndrome.
Time for Lyme Aid
Summer Get Ready to Roust Team Human. Are ticks winning the summertime war
against humans? We have ways to combat Lyme disease, but those ticks have quite a few
tricks up their arcarine sleeves. (A.Shepherd/ABCNEWS.com)
Understanding FM: Why Does Even the Tender Touch
Such is the basis of study for a team of researchers from the
University of Florida (UF), led by Dr. Roland Staud, an associate professor of medicine at
UF's College of Medicine who is also affiliated with the UF Brain Institute. Working with
two other professors from the university, Dr. Staud will use a nearly $800,000 grant from
the National Institutes of Health (NIH) recently awarded to him to continue his
fibromyalgia (FM) studies for the next four years. For the complete text of this article
Misspending of CDC Funds
By Lisa Lorden
Dateline: 6/2/99 - Lisa Lorden, host of About.com's Chronic
Fatigue Syndrome Website, has posted an article regarding the Inspector General's
report on the CDC misspending of research funds. She's included links to most of the
online information that is available, including items from the CFIDS Association and news
coverage by the general press. You'll find the article at: http://chronicfatigue.about.com/library/weekly/aa060299.htm
Ordinary Touches Multiply Into Severe Pain For
By Eric Benjamin Lowe
GAINESVILLE, Fla.---The millions of Americans who suffer from
fibromyalgia live with a two-edged sword: excruciating pain, accompanied by the doubts of
many who dismiss it as a made-up illness invented by a troubled mind.
But researchers at the University of Florida and elsewhere are
beginning to piece together clues that reveal the physical basis of the puzzling syndrome
that causes severe fatigue and aches, and has defied easy diagnosis. UF scientists
have found an abnormal central nervous system reaction in those with fibromyalgia-the body
magnifies ordinary repetitive stimulation into an experience of crippling pain.
This is particularly important because it has been unclear if
fibromyalgia was just an imagined illness or a real syndrome," said Dr. Roland Staud,
an associate professor of medicine at UF's College of Medicine who also is affiliated with
the UF Brain Institute. "We now have good evidence that shows that it's not a
psychological abnormality, but that there is a neurological abnormality present."
Staud, who presented his research findings at the annual meeting
of the American College of Rheumatology last November, recently was awarded a National
Institutes of Health grant worth nearly $800,000 to continue his studies for the next four
years. Donald Price, a UF professor of oral and maxillofacial surgery, and Charles Vierck,
a UF professor of neuroscience, are collaborating on the research. Their goal is to
develop a better understanding of the condition, with an eye toward improving diagnostic
tests and treatments.
An estimated 3.7 million people in the United States - primarily
women who are diagnosed during their 30s and 40s - have fibromyalgia, according to the
NIH. A chronic illness with no known cure, its cause also is not known.
Researchers have theorized that an injury to the central nervous
system or an infectious agent might be responsible for triggering it in people who have
inherited susceptibility. Symptoms include persistent and widespread musculoskeletal pain,
fatigue and tenderness in the neck, spine, shoulders and hips.
Staud and colleagues found the central nervous system abnormality
by conducting a series of repetitive stimulation tests on people with the syndrome as well
as healthy research participants. The tests involved repeatedly placing warm plates on
their hands and arms. The healthy participants felt the sensation but did not report it as
pain. For those with fibromyalgia, however, the sensation would magnify with each
repetition into an experience of crippling and unbearable pain.
"When a sensation signal reaches the spinal cord, the signal
can be omitted, changed or augmented," Staud said. "If it is augmented, then
something that is innocuous, such as pressure on the skin, can then be perceived as a
Jessica LeMay, one of Staud's patients, has been battling
fibromyalgia since 1993. The 30-year-old Lake City resident said the pain starts in one
area and usually spreads, sometimes becoming overwhelming. "I imagine if
someone had taken a baseball bat and beaten me with it, that's got to be what it feels
like," she said. "Depending on the day, I'll just move out of the way if someone
tries to touch me." The pain of fibromyalgia often interferes with a person's
"These are people who are diagnosed in their productive
years. Many have personal or professional problems adjusting to the pain experience,"
Staud said. "The illness makes some people feel dysfunctional because they can't do
the activities they once did." The condition can worsen from stress and
inadequate sleep, Staud said.
Because living with fibromyalgia often causes stress, and pain
makes sleeping difficult, a vicious cycle develops. LeMay said many people dismiss
her condition, not understanding the "huge difference" between her severe
fatigue and the healthy person's occasional tiredness. "When this fatigue would
come about, it's almost like a weight being dropped on you, and you can't function
anymore," she said. LeMay said she is hopeful that Staud's research will lead
to more effective treatment for fibromyalgia patients and better understanding by the
general public. "In our society, you either get better or you die, and
fibromyalgia patients don't do that," she said. "We don't fit in the mold, so
people don't know what to do with us."
Note: This story has been adapted from a news release issued by
University of Florida for journalists and other members of the public. If you wish to
quote from any part of this story, please credit University of Florida as the original
source. You may also wish to include the following link in any citation: http://www.sciencedaily.com/releases/1999/05/990521094553.htm
This Ruling clarifies disability policy for the evaluation and
adjudication of disability claims invo1ving Chronic Fatigue Syndrome (CFS). This Ruling
explains that, when it is accompanied by appropriate medical signs or laboratory findings,
CFS is a medically determinable impairment that can be the basis for a finding of
``disability.'' This Ruling ensures that all adjudicators will use the same policies and
procedures in evaluating disability claims involving CFS, and provides a consolidated
statement of these policies and procedures.
SSA raises from $500 to $700 the average monthly earnings
guidelines used to determine whether work done by persons with impairments is SGA. They
raised this level as part of efforts to encourage individuals with disabilities to attempt
to work, and to provide an updated indicator of when earnings demonstrate the ability to
engage in substantial gainful activity (SGA).
Did Defense use soldiers as 'guinea pigs'? By Sarah Foster
From Insight Magazine. After a year of stonewalling by the
DOD, a new study at the prestigious Tulane University Medical School confirms that victims
of a mysterious sickness may have been poisoned.
From Popular Science.
One man's dogged research points to an unusual-and likely-suspect...
New York Times.
More than a century ago, physicians encountered a syndrome they called neurasthenia,
characterized by a wide variety of symptoms that variously included fatigue, weakness,
muscle and joint pain, headache, memory and concentration difficulties, runny nose,
disturbed sleep and palpitations. Researchers expected that a cause would soon be
identified -- a virus, bacterium or toxic agent -- that would account for these
complaints. It never happened.
Instead, through subsequent decades, a host of disorders with
similar sets of symptoms were identified. They included so-called "effort
syndrome" that afflicted veterans of the Civil War and World War I, chronic
brucellosis, hypoglycemia, myalgic encephalomyelitis, chronic candidiasis and chronic
Now the prevailing ailments go by the names of chronic fatigue
syndrome, fibromyalgia, multiple chemical sensitivities, sick building syndrome,
silicone-associated rheumatic disease (from breast implants) and gulf war syndrome.
A long-awaited inquiry into the crash of an Israeli cargo jet into an Amsterdam apartment
complex has opened in The Hague. A Dutch parliamentary commission is trying to find out
whether the crash six years ago was responsible for serious medical problems subsequently
reported by rescue workers and local residents. It will also look into the cause of the
WESTPORT, Mar 16 (Reuters Health)
An engineered recombinant herpes simplex virus containing cDNA for human preproenkephalin,
an opioid peptide precursor, has been shown to block certain pain responses in mice. This
approach could be used to control chronic and severe pain in humans, the research team
Children With M.E.
A new report by an independent group of medical and educational
professionals, "Children With M.E.", is now available from the editor, Dr Anne
Macintyre. This report can be viewed and downloaded at http:// www.ayme.org.uk and http://www.jafc.demon.co.uk/yaonline