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Also includes /CFIDS/ME/GWS/MCS
New Links added: Wednesday, August 30, 2000
We're always looking for new
and important sites on FMS/CFIDS.
Add your FMS/CFIDS/ME/GWS/MCS Web Site to our Links Page:
Site description: (40 words or less):
The Fibrom-L Help Site does not offer medical advice or diagnosis. We cannot guarantee the validity or accuracy of any of the information presented here. Use of the information at these sites is at your own risk! We do recommend that you consult with your personal physician before beginning or modifying any treatment or exercise regimen.
Rest Ministries, Chronic Illness/Pain Support Serves people who live with chronic illness or pain, caregivers and churches, through programs and resources in a Christian environment, including newsletters, daily devotionals, chat and Bible studies. We currently have over 1000 hours each month being donated - all visitor to our site who live with illness or pain and help us continue our outreach through prayers, encouragement, coordinator positions, etc..
REST MINISTRIES, INC.
Serving people who live with chronic illness or pain.
PO Box 502928, San Diego, CA 92150
toll-free 888-751-REST (7378)
Wing-n-a-prayer - Christian site for encouragement and information and a Fibromyalgia page with excellent FMS links.
Vallarino, M.D., P.C., 119 70th Street, Brooklyn, NY 11209, (718) 680-7229,
Fax: (718) 680-0489 - Board certified physiatrists specializing in
musculoskeletal, orthopedic, neurologic, sport-related, and occupational
rehabilitation. This practice includes physical therapy on site supervised
directly by the physiatrists. Also included is electrodiagnostic evaluation of
peripheral nerve and muscle via nerve conduction studies and electromyography.
English and Spanish is spoken in every office.
The American Pain Foundation is a nonprofit information resource and patient advocacy organization serving people with pain. Our mission is to improve the quality of life of people with pain by providing practical information for patients, raising public awareness and understanding of pain, and advocating against barriers to effective treatment. We represent exclusively the interests of people who suffer from pain and we fill the need for a grassroots, consumer-driven, patient-focused organization promoting better pain management.
North Carolina Chemical Injury Network The North Carolina Chemical Injury Network (NCCIN) was founded because there was no North Carolina organization that was dedicated exclusively to providing support for NC chemically affected people. NCCIN is a Organizing effort in Progress.
The Atlanta Pain Relief Center - A Center for Chronic Intractable Pain and Fibromyalgia-Chronic Fatigue Immune Dysfunctional Syndrome (FM-CFIDS) Serving Atlanta and Fayetteville, Georgia. Tel: (770) 632-7592
Living With Chronic Disease - Chronic Disease does not only effect the
individual who has it, but, everyone in the family.
This website is to help others know they are not alone.
Arthritis Insight is owned and operated entirely by people with arthritis. Arthritis Insight covers the facts of arthritis, treatments and medications. We feel that knowledge and education are an important weapon in the fight against these diseases. The more you know the better equipped you to handle whatever arthritis throws at you.
The World ACM Association - committed to the understanding of Arnold Chiari Malformations.
http://www.restministries.org, is a nonprofit Christian organization that serves people who live with chronic illness or pain and teaches churches on the many aspects of invisible chronic conditions.
Fibromyaliga.com -An information resource for anyone who suffers from or is interested in "The Fibro Five": Fibromyalgia, Interstitial Cystitis, Chronic Fatigue, Migraine Headache, Irritable Bowel. We are a support network and credible source of validated information, a sounding board for controversial or emerging treatments of promise, and a referral source to physicians and care practitioners that believe in and skillfully treat patients suffering from "The Fibro-5."
We Move If you, a member of your family, or someone you care about is affected by Restless Legs Syndrome (RLS), please read this. You will find information about the primary features of RLS, its potential causes, and today's most effective treatment options. This site also includes a glossary of RLS terms and FAQ area.
The Northwest Center for Neurosomatic Disorders This website has been developed to provide patients and clinical practitioners with background information regarding the current medical understanding of the nature of Fibromyalgia, Chronic Fatigue Syndrome and other disorders as neurosomatic disorders and how, in our practice, medications are being used to find relief from these conditions.
The Chronic Pain Forum began in February 1999. Bev and Mike Strickland researched and questioned the chronic pain community, including those with pain and those who care for them, to establish what unmet needs there were. The list was formed with the goal of furthering the end of poor pain management for chronic pain patients through participation of different interest groups.
Fibromyalgia: Resources for Families Information and resources catering to the family and friends of someone diagnosed with fibromyalgia syndrome.
Michelle Akers CFIDS homepage In 1993, Michelle Akers (who some experts have called the greatest women's soccer player ever), was diagnosed with Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS). Taken from Michelle Akers' Homepage (http://www.michelleakers.com), and is used with Michelle's permission. ©1998 Michelle Akers."
The Apnea Patient's News, Education & Awareness Network - an engaging, interesting, and informative site for information about Obstructive Sleep Apnea (OSA) for:
SleepNet - Everything you wanted to know about sleep disorders but were too tired to ask
A Physician's Guide to Fibromyalgia Syndrome, by: David Nye MD The Physician well known to those on Fibrom-L as one who has dedicated a great portion of his weekly schedule to answer the "FMily's" questions. From his website: "FMS is a common, chronic, and if untreated, often disabling disorder of unknown etiology associated with neuroendocrine and immunologic changes and disordered deep sleep. Most patients can be helped with a combination of medication, exercise, and maintenance of a regular sleep schedule."
Bob Fahlsing's FMS MPS CFS Links Page
American Autoimmune Related Diseases Association medical information page
GUAI-SUPPORT Guai-Support offers online support and information for people with fibromyalgia who are using Guaifenisen. Whether you decide to subscribe to the Guai-Support listserv or not, you may find the information and resources here helpful. Guai-Support is a place where we have the opportunity to share info that will benefit each other.
HealthAtoZ Search Engine A comprehensive search engine for all medical and health related sites. HealthAtoZ aspires to be your internet navigation tool and information resource in health and medicine.
FIBRO ONE'S Fibromyalgia Activism
Association de la Fibromyalgie de l'Estrie One of the more interesting websites on Fibromyalgia, this one is in both French and English!
Chronic Fatigue Syndrome on Mediconsult.com
Sleep Disorder Resources at MentalHealth.net
Fibromyalgia Information - A nice personal site with information including: What is fibromyalgia, the symptoms of fibromyalgia, treatment of fibromyalgia, WWW resources for fibromyalgia, magazine articles from the people who know and Fibromyalgia Pen Pals!
Fibromyalgia at thriveonline.com
Fibromyalgia Page for Men
Thumper's Fibromyalgia Page
Alternative Treatments for Fibromyalgia - Steve Emerson's Alternative Treatments Page
About.com - A Great FMS/CFS Information Resource
Fibromyalgia Patient Support Center
Friends Fighting Fibromyalgia
Co-Cure CFS and FMS Information Exchange Home Page
Kealalaina's Fibromyalgia Page
Myalgic Encephalomyelitis/Fibromyalgia Society of Alberta
Dr. Flechas on Fibromyalgia
National Fibromyalgia Research Association
National ME/FM Action Network
Moira's Canberra Fibromyalgia and Chronic Fatigue Syndrome page
The Chronic Fatigue Immune Dysfunction Syndrome/Fibromyalgia Information Page
MedSupport FSF International
Oregon Fibromyalgia Foundation
From Fatigued to Fantastic
Chronic Pain, CFS, FMS and other Medical Resources
FIBROMEET - A Web Site About Fibromyalgia and the Guaifenisen Treatment
Listening to CFIDS
Myalgic Encephalomyelitis Support Services
Sheri's Fibromyalgia & Chronic Fatigue Resources Site
Fibromyalgia and Chronic Fatigue Syndrome Center
Resource Site for Fibromyalgia Survivors
Health Mind Body
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Most recent revision Wednesday, August 30, 2000