Organizations dedicated to
The Chronic Syndrome Support Association, Inc.
801 Riverside Drive
Lumberton, NC 28358-4625
Contact Person: Nancy Solo
The Chronic Syndrome Support Association, Inc. was founded in order to educate the general
population and health-care professionals who lack current knowledge of the research being
done, and potential research that needs to be done, on these serious, yet invisible,
conditions. Information on the quarterly newsletter and free pamphlet is available
at the site.
The Fibromyalgia & Chronic
Myofascial Pain Syndrome Institute, Inc.
c/o Devin Starlanyl
Spalding Hill Road
West Chesterfield, NH 03466
The areas that we need to address immediately include: Educating MDs and HMOs so that
quick diagnosis of and good treatment of FMS/CMPS becomes becomes standard instead of
exceptional, fetting better legal and advisory resources available to FMSers who need help
with state and HMO organizations, starting a monthly newsletter of items of interest to
FMSers, preparing an on-line data base of treatment and counselling resources available,
expanding our scope until FMS/CMPS is better understood, better diagnosed, better treated
and if possible, prevented, world-wide.
The American Fibromyalgia
Syndrome Association, Inc.
6380 E. Tanque Verde, Suite D
Tucson, AZ 85715
AFSA is the only charitable organization whose primary mission is to seed research in
fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). AFSA acknowledges that
patient and physician education, public awareness and advocacy are all important
ingredients in aiding the lives of people with FMS and CFS.
P.O. Box 31750
Tucson, AZ 85751
Contact: Ms. Kristin Thorson
The Fibromyalgia Network has a list of doctors. Include your name, address, phone number,
and the state or states you're interested in. The newsletter is published quarterly and is
$19.00 per year.
A clearinghouse for information about advances in research and for
patient information on fibromyalgia and chronic fatigue syndrome. Offers free information
along with a state-by-state list of referrals to doctors and support groups. The
organization also answers general questions about fibromyalgia by phone or mail.
The Fibromyalgia Times
Fibromyalgia Alliance of America
P.O. Box 21990
Columbus, OH 43221-0990
Contact: Mary Anne Saathoff, R.N.
Mary Anne at the Fibromyalgia Alliance of America (FMAA) has a list of doctors, other
health care professionals and support groups.
Email: Masaathoff @aol.com and include your
full name, address & phone
number. The Newsletter is published quarterly and is $25.00 per year.
Environmental Illness Associaion of Canada
536 Dovercourt Ave. Ottawa AL KH9R PHONE: 613-728-9493
FAX: 613-728-1715 CONTACT_PERSON: Judith Spence EMAIL firstname.lastname@example.org
The EISC is an advocacy and eduction providing organization for those affected by
Fibromyalgia Association of Texas
3810 Keele Drive
Garland, TX 75041
Contact: Ms. Faye Wright
Fibromyalgia Association of Greater Washington (FMAGW)
13203 Valley Drive
Woodbridge, VA 22191-1531
Contact person: Tamara Liller
The Newsletter is published quarterly.
The Ontario Fibromyalgia Association
393 University Avenue, Suite 1700,
Toronto, Ontario M5G 1E6 * Phone 416 979-7228 * Fax 416 979-8366
$20.00 Canadian 4 issues per year
The FM/ME Society of Alberta
1323 N - 6455 Macleod Tr. SW
Calgary, Alberta, Canada T2H 2W2
Fibromyalgia Association of BC
PO Box 15455 Vancouver, British Columbia, Canada V6B 5B2
phone 604 540-0488
fax 604 520-0481
$20.00 Canadian - published quarterly
Inland Northwest Fibromyalgia Association
933 West Third Avenue, Suite 211
Spokane, Washington 99204-1527
phone 509 838-3001
$20.00 US - published quarterly
FMS Association of Saskatchewan
Box 7525, Saskatoon, Saskatchewan, Canada S7K 4L4
phone 306 653-0982
published quarterly - $18.00 Canadian
Fibromyalgia Support Group of Winnipeg, Inc.
825 Sherbrook Street
Winnipeg, Manitoba, Canada R3A 1M5
phone 204 772-6979 fax 204 786 0860
$20 Canadian annually
P.O. Box 2591
Sumas, Washington USA 98295
The Journal of the Nth. Rovers M.E./CFS/FM Support Assoc. Inc.
PO Box 6024 South Lismore NSW 2480, Australia
Fibromyalgia Association UK
PO Box 206
Stourbridge, Wet Midlands, Dy( 8Yl
National Fibromyalgia Research Association
PO Box 500
Salem, OR 97302
National Chronic Pain
Outreach Association, Inc.
7070 Old Georgetown Road, Suite 100
Bethesda, MD 20814-2429
of Central Ohio
P.O. Box 21990
Columbus, OH 43221-0990
M - F 10 - 6 EST
This organization has a nurse available to answer medical questions
and will send an information packet, as well as a list of resources, support groups, and
doctors in your area. They also maintain a file of research articles and publish a
quarterly newsletter, The FMS Ohio Newsletter; subscriptions are $15.
5650 Forest Lane
Dallas, TX 75230
USA Fibromyalgia Association
National Institute of Arthritis and
Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
The National Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse serves the public, patients, and health professionals by
disseminating information, locating other information sources, creating health information
materials, and participating in a national Federal database on health information. The Web
site offers consumer information on scoliosis, arthritis, lupus, osteoporosis, and
P.O. Box 7669
Atlanta, GA 30326
M - F 9 - 5 EST
The Arthritis Foundation supports research to find ways to cure and
prevent arthritis and seeks to improve the quality of life for those affected by
arthritis. The Foundation offers a variety of programs that can help people with arthritis
make life easier and less painful. These services include: self-help courses, water and
land-based exercise classes, home study courses, instructional video tapes, public forums,
a wide variety of educational brochures and booklets for the lay public (including one on
fibromyalgia), a national bimonthly consumer magazine called Arthritis Today,
continuing education courses, and publications for health professionals.
Fibromyalgia Association of Florida,
P.O. Box 14848
Gainesville, FL 32604-4848
M - F 9 - 5 EST
Sends a free pamphlet on fibromyalgia along with a complimentary
copy of the quarterly newsletter The Florida Fibro News. A $25 membership includes a
subscription to the newsletter.
American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
(24 hour message)
M - F 8:30 - 5 PST
For people who suffer chronic pain, this association provides a
strong support network of over 800 chapters throughout the country. For a $10 donation,
members can receive a two-year subscription to the quarterly newsletter The ACPA
Division of Viral and Rickettsial
National Center for Infectious Diseases
Centers for Disease Control and Prevention
1600 Clifton Rd. NE
Atlanta, GA 30333
Provides information on chronic fatigue syndrome for the general
public and health care workers. Callers may request written materials by leaving a name
and address on the automated voice mail system, or listen to recorded messages regarding
transmission and symptoms of chronic fatigue syndrome, testing, treatment and prevention,
and trends in occurrence of the disease.
National Chronic Fatigue Syndrome and
PO Box 18422
Kansas City, MO 64133 816/931-4777(24 hour-message)
Provides information to the public and health professionals on the
nature of chronic fatigue and related disorders. Makes referrals to support groups, phone
contacts, and physicians.
National Institute of Allergy and
NIAID Office of Communications
National Institutes of Health
Building 31, Room 7A-50
Bethesda, MD 20892
Responds to written questions and requests for information. The office provides free
single copies of pamphlets, fact sheets, and other appropriate materials.
National Sleep Foundation
729 15th St. NW, 4th floor
Washington, DC 20005
Founded in 1991, the National Sleep Foundation is a nonprofit
organization dedicated to improving the quality of life for the millions of Americans who
suffer from sleep disorders and to the prevention of catastrophic accidents related to
sleep deprivation or sleep disorders. Responds to written requests for general brochures
on sleep. Provides general information on the sleep disorders associated with fibromyalgia
and chronic fatigue syndrome. Makes referrals to accredited sleep centers in your area.
CARF -- The Rehabilitation
4891 E. Grant Rd.
Tucson, AZ 85712
CARF, the Rehabilitation Accreditation Commission, is a private,
not-for-profit organization that promotes quality rehabilitation services. It does this by
establishing standards of quality for organizations to use as guidelines in developing and
offering their programs or services to consumers. CARF uses the standards to determine how
well an organization is serving its consumers and how it can improve.
Site to search for doctors & support
groups by state:
Co-Cure CFS/FM Good Doctor List
Association of State Medical Board
Executive Directors - DocFinder
To Check Prescriptions:
DIDX's Adverse Drug Interaction Search Engine
RxList - The Internet Drug Index
Information Network Database
Master List of Support Groups (by country)
Support Group Directory
Carolina Support Group Directory
Support Groups around the world.
This newsgroup used to be linked to the mailing list Fibrom-L, but since October 1997 this
arrangement has changed. It has always been a busy group - one of the most popular of the
health-oriented newsgroups - and is is likely to continue to be even with the splitting
off of the mailing list. Members discuss symptoms and medications, share experiences and
offer support to each other. The newsgroup is not moderated.
Pain Patients Bill of Rights
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