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FMS Resources

New Links added: Sunday, November 19, 2000

We're always looking for new and important sites on FMS.
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Organizations dedicated to Fibromyalgia


The Chronic Syndrome Support Association, Inc
.
801 Riverside Drive
Lumberton, NC 28358-4625
Web: http://www.cssa-inc.org
Contact Person:  Nancy Solo
The Chronic Syndrome Support Association, Inc. was founded in order to educate the general population and health-care professionals who lack current knowledge of the research being done, and potential research that needs to be done,  on these serious, yet invisible, conditions.  Information on the quarterly newsletter and free pamphlet is available at the site.

The Fibromyalgia & Chronic Myofascial Pain Syndrome Institute, Inc.
http://www.sover.net/~devstar/inst1.htm
c/o Devin Starlanyl
Spalding Hill Road
West Chesterfield, NH 03466
The areas that we need to address immediately include: Educating MDs and HMOs so that quick diagnosis of and good treatment of FMS/CMPS becomes becomes standard instead of exceptional, fetting better legal and advisory resources available to FMSers who need help with state and HMO organizations, starting a monthly newsletter of items of interest to FMSers, preparing an on-line data base of treatment and counselling resources available, expanding our scope until FMS/CMPS is better understood, better diagnosed, better treated and if possible, prevented, world-wide.

The American Fibromyalgia Syndrome Association, Inc.
http://www.afsafund.org/
6380 E. Tanque Verde, Suite D
Tucson, AZ  85715

(520) 733-1570 
AFSA is the only charitable organization whose primary mission is to seed research in fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). AFSA acknowledges that patient and physician education, public awareness and advocacy are all important ingredients in aiding the lives of people with FMS and CFS.

Fibromyalgia Network
http://www.fmnetnews.com/
P.O. Box 31750
Tucson, AZ 85751
800/853-2929
Contact: Ms. Kristin Thorson
The Fibromyalgia Network has a list of doctors. Include your name, address, phone number, and the state or states you're interested in. The newsletter is published quarterly and is $19.00 per year.

A clearinghouse for information about advances in research and for patient information on fibromyalgia and chronic fatigue syndrome. Offers free information along with a state-by-state list of referrals to doctors and support groups. The organization also answers general questions about fibromyalgia by phone or mail.

The Fibromyalgia Times
Fibromyalgia Alliance of America

P.O. Box 21990
Columbus, OH 43221-0990
614/457-4222
Contact: Mary Anne Saathoff, R.N.
Mary Anne at the Fibromyalgia Alliance of America (FMAA) has a list of doctors, other health care professionals and support groups.
Email: Masaathoff @aol.com and include your full name, address & phone
number. The Newsletter is published quarterly and is $25.00 per year.

Environmental Illness Associaion of Canada                                            http://www.eisc.ca  536 Dovercourt Ave. Ottawa AL KH9R  PHONE:  613-728-9493
FAX:  613-728-1715  CONTACT_PERSON: Judith Spence  EMAIL   eisc@eisc.ca
The EISC is an advocacy and eduction providing organization for  those affected by environmental illness.

Fibromyalgia Association of Texas
3810 Keele Drive
Garland, TX 75041
972/271-5085
Contact: Ms. Faye Wright

Fibromyalgia Frontiers
Fibromyalgia Association of Greater Washington (FMAGW)

13203 Valley Drive
Woodbridge, VA 22191-1531
Phone: 703/790-2324
Fax: 703/494-4103
Web: http://www.fmagw.org
Contact person: Tamara Liller
The Newsletter is published quarterly.

Tender Points
The Ontario Fibromyalgia Association
393 University Avenue, Suite 1700,
Toronto, Ontario M5G 1E6 * Phone 416 979-7228 * Fax 416 979-8366
$20.00 Canadian 4 issues per year

Alberta Articulator
The FM/ME Society of Alberta

Box 30402
1323 N - 6455 Macleod Tr. SW
Calgary, Alberta, Canada T2H 2W2

FM Forum
Fibromyalgia Association of BC

PO Box 15455 Vancouver, British Columbia, Canada V6B 5B2
phone 604 540-0488
fax 604 520-0481
e-mail: bcfms@alternatives.com
$20.00 Canadian - published quarterly

Inland Northwest Fibromyalgia Association
933 West Third Avenue, Suite 211
Spokane, Washington 99204-1527
phone 509 838-3001
$20.00 US - published quarterly

FM Bulletin
FMS Association of Saskatchewan

Box 7525, Saskatoon, Saskatchewan, Canada S7K 4L4
phone 306 653-0982
published quarterly - $18.00 Canadian

FMS Today
Fibromyalgia Support Group of Winnipeg, Inc
.
825 Sherbrook Street
Winnipeg, Manitoba, Canada R3A 1M5
phone 204 772-6979 fax 204 786 0860
$20 Canadian annually

Doug Shore
ME/FM Manual
P.O. Box 2591
Sumas, Washington USA 98295

Country Network
The Journal of the Nth. Rovers M.E./CFS/FM Support Assoc. Inc.

NSW. Australia
PO Box 6024 South Lismore NSW 2480, Australia
$12.00 annually

Fibromyalgia Association UK
PO Box 206
Stourbridge, Wet Midlands, Dy( 8Yl
e-mail: fms@cableinet.co.uk

National Fibromyalgia Research Association
PO Box 500
Salem, OR 97302
http://www.teleport.com/~nfra/Contacts.htm

National Chronic Pain Outreach Association, Inc.
7070 Old Georgetown Road, Suite 100
Bethesda, MD 20814-2429
Telephone: 301-652-4948
Fax: 301-907-0745

Fibromyalgia Association of Central Ohio
P.O. Box 21990
Columbus, OH 43221-0990
614/457-4222
M - F 10 - 6 EST

This organization has a nurse available to answer medical questions and will send an information packet, as well as a list of resources, support groups, and doctors in your area. They also maintain a file of research articles and publish a quarterly newsletter, The FMS Ohio Newsletter; subscriptions are $15.

Fibromyalgia Association of Texas
5650 Forest Lane
Dallas, TX 75230

USA Fibromyalgia Association
1-614-675-1152

National Institute of Arthritis and Musculoskeletal and Skin Diseases
http://www.nih.gov/niams/
Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
301/495-4484
TTY: 301/565-2966
Fax: 301/587-4352

The National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse serves the public, patients, and health professionals by disseminating information, locating other information sources, creating health information materials, and participating in a national Federal database on health information. The Web site offers consumer information on scoliosis, arthritis, lupus, osteoporosis, and fibromyalgia.

Arthritis Foundation
http://www.arthritis.org/
P.O. Box 7669
Atlanta, GA 30326
800/283-7800
24-hour recording
404/872-7100
M - F 9 - 5 EST

The Arthritis Foundation supports research to find ways to cure and prevent arthritis and seeks to improve the quality of life for those affected by arthritis. The Foundation offers a variety of programs that can help people with arthritis make life easier and less painful. These services include: self-help courses, water and land-based exercise classes, home study courses, instructional video tapes, public forums, a wide variety of educational brochures and booklets for the lay public (including one on fibromyalgia), a national bimonthly consumer magazine called Arthritis Today, continuing education courses, and publications for health professionals.

Fibromyalgia Association of Florida, Inc.
P.O. Box 14848
Gainesville, FL 32604-4848
904/371-2750
M - F 9 - 5 EST

Sends a free pamphlet on fibromyalgia along with a complimentary copy of the quarterly newsletter The Florida Fibro News. A $25 membership includes a subscription to the newsletter.

American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
916/632-0922
(24 hour message)
M - F 8:30 - 5 PST
FAX: 916/632-3208

For people who suffer chronic pain, this association provides a strong support network of over 800 chapters throughout the country. For a $10 donation, members can receive a two-year subscription to the quarterly newsletter The ACPA Chronicle.

Division of Viral and Rickettsial Diseases
National Center for Infectious Diseases
Centers for Disease Control and Prevention
Information Services
1600 Clifton Rd. NE
Mailstop G-18
Atlanta, GA 30333
404/332-4555
(24-hour line)

Provides information on chronic fatigue syndrome for the general public and health care workers. Callers may request written materials by leaving a name and address on the automated voice mail system, or listen to recorded messages regarding transmission and symptoms of chronic fatigue syndrome, testing, treatment and prevention, and trends in occurrence of the disease.

National Chronic Fatigue Syndrome and Fibromyalgia Association
PO Box 18422
Kansas City, MO 64133 816/931-4777(24 hour-message)

Provides information to the public and health professionals on the nature of chronic fatigue and related disorders. Makes referrals to support groups, phone contacts, and physicians.

National Institute of Allergy and Infectious Diseases
NIAID Office of Communications
National Institutes of Health
http://www.niaid.nih.gov/
Building 31, Room 7A-50
Bethesda, MD 20892

Responds to written questions and requests for information. The office provides free single copies of pamphlets, fact sheets, and other appropriate materials.

National Sleep Foundation
http://www.sleepfoundation.org/
729 15th St. NW, 4th floor
Washington, DC 20005
202/347-3471

Founded in 1991, the National Sleep Foundation is a nonprofit organization dedicated to improving the quality of life for the millions of Americans who suffer from sleep disorders and to the prevention of catastrophic accidents related to sleep deprivation or sleep disorders. Responds to written requests for general brochures on sleep. Provides general information on the sleep disorders associated with fibromyalgia and chronic fatigue syndrome. Makes referrals to accredited sleep centers in your area.

CARF -- The Rehabilitation Accreditation Commission
http://carf.org
4891 E. Grant Rd.
Tucson, AZ 85712
520/325-1044

CARF, the Rehabilitation Accreditation Commission, is a private, not-for-profit organization that promotes quality rehabilitation services. It does this by establishing standards of quality for organizations to use as guidelines in developing and offering their programs or services to consumers. CARF uses the standards to determine how well an organization is serving its consumers and how it can improve.

 


Site to search for doctors & support groups by state:

Co-Cure CFS/FM Good Doctor List

Association of State Medical Board Executive Directors - DocFinder


To Check Prescriptions:

Medication Checker.

Online PDR

DIDX's Adverse Drug Interaction Search Engine

RxList - The Internet Drug Index

PharmWeb

Pharmaceutical Information Network Database


Support Groups:

World Master List of Support Groups (by country)

North Carolina Support Group Directory

The South Carolina Support Group Directory

FM Support Groups around the world.


Fibromyalgia Newsgroup

alt.med.fibromyalgia
This newsgroup used to be linked to the mailing list Fibrom-L, but since October 1997 this arrangement has changed. It has always been a busy group - one of the most popular of the health-oriented newsgroups - and is is likely to continue to be even with the splitting off of the mailing list. Members discuss symptoms and medications, share experiences and offer support to each other. The newsgroup is not moderated.


Pain Patients Bill of Rights


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Most recent revision Sunday, November 19, 2000